by Timothy Caulfield *
Cow urine, bleach and cocaine have all been
recommended as COVID-19 cures — all guff. The pandemic has been cast as a
leaked bioweapon, a byproduct of 5G wireless technology and a political hoax —
all poppycock. And countless wellness gurus and alternative-medicine
practitioners have pushed unproven potions, pills and practices as ways to
‘boost’ the immune system.
Thankfully, this explosion of misinformation — or, as
the World Health Organization has called it, the “infodemic” — has triggered an
army of fact-checkers and debunkers. Regulators have taken aggressive steps to
hold marketers of unproven therapies to account. Funders are supporting
researchers (myself included) to explore how best to counter the spread of
COVID-19 claptrap.
I have studied the spread and impact of health
misinformation for decades, and have never seen the topic being taken as
seriously as it is right now. Perhaps that is because of the scale of the crisis
and the ubiquity of the nonsensical misinformation, including advice from some
very prominent politicians. If this pro-science response is to endure, all
scientists — not just a few of us — must stand up for quality information.
Here are two places to start. First, we must stop tolerating and legitimizing health
pseudoscience, especially at universities and health-care institutions. Many
bogus COVID-19 therapies have been embraced by integrative health centres at
leading universities and hospitals. If a respected institution, such as the
Cleveland Clinic in Ohio, offers reiki — a science-free practice that involves
using your hands, without even touching the patient, to balance the “vital life
force energy that flows through all living things” — is it any surprise that
some people will think that the technique could boost their immune systems and
make them less susceptible to the virus? A similar argument can be made about
public-health providers in Canada and the United Kingdom: by offering
homeopathy, they de facto encourage the idea that this scientifically
implausible remedy can work against COVID-19. These are just a few of myriad
examples.
In my home country of Canada, regulators are currently
cracking down on providers such as chiropractors, naturopaths, herbalists and
holistic healers who are marketing products against COVID-19. But the idea that
a spinal adjustment, intravenous vitamin therapy or homeopathy could fend off
an infectious disease was nonsense before the pandemic.
The fight against pseudoscience is weakened if trusted
medical institutions condemn an evidence-free practice in one context and
legitimize it in another. We need good science all the time, but particularly
during disasters.
There is some evidence that alternative treatments and
placebo effects can relieve distress — a common justification for tolerating
unproven alternative treatments. But it’s inappropriate to deceive people (even
for their benefit) with magical thinking, and it is inappropriate for
scientists to let such misinformation go unremarked.
Second, more researchers should become active
participants in the public fight against misinformation. Those pushing unproven
ideas use the language of real science — a phenomenon I call
‘scienceploitation’ — to legitimize their products. It is, alas, all too
effective. Homeopathy and energy therapies, proponents argue, depend on quantum
physics. Colonic hydrotherapy is justified using phrases borrowed from
microbiome studies. And the language of stem-cell research is used to promote a
spray claiming to have immune-boosting properties.
We need physicists, microbiologists, immunologists,
gastroenterologists and all scientists from relevant disciplines to provide
simple and shareable content explaining why this hijacking of real research is
inaccurate and scientifically dishonest.
It does actually need to be said that quantum physics
doesn’t explain homeopathy and energy therapies such as reiki. That a colonic
won’t bolster your immune system. That, no, a supplement spray won’t enhance
the functioning of your stem cells.
In a world where anti-vaccination advocates and
climate-change denialists persist, talking sense might seem hopeless,
especially when social-media algorithms and deliberate bad actors amplify
pseudoscience messages. There is no easy answer to solving this, but
science-informed messages are not easily found. We need more researchers making
an effort. A quick search turned up only one physicist publicly countering
claims that quantum physics explains homeopathy, although I know that their
view is the overwhelming consensus.
Disinformation expert Claire Wardle at Harvard
University in Cambridge, Massachusetts, has said, “The best way to fight
misinformation is to swamp the landscape with accurate information that is easy
to digest, engaging and easy to share on mobile devices.” So, let’s get
swamping.
Tweet. Write a comment for the popular press. Give
public lectures. Respond to reporters’ requests. Empower your trainees to get
involved in science communication. Share accurate information that you feel is
valuable for the public. Complain to the appropriate regulatory agency or
oversight entity if you think there is a problem that needs to be rectified.
Correcting misrepresentations should be viewed as a
professional responsibility. Some scientific societies have already moved in
that direction. In 2016, for example, I worked with the International Society
for Stem Cell Research on their guidelines for clinical translation, which tell
researchers to “promote accurate, balanced, and responsive public
representations”, and to ensure their work is not misrepresented.
Of course, part of the scientific community’s fight
against pseudoscience is keeping its own house in order. Those pushing
biomedical conspiracy theories and other nonsense point to legitimate concerns
about how research is funded, interpreted and disseminated. Scientific
integrity — particularly, refraining from hype and being transparent about
conflicts — is crucial. We must promote both trust in science and trustworthy
science.
Let us hope that one of the legacies of this crisis
will be the recognition that tolerating pseudoscience can cause real harm. Good
science and public trust are perhaps the most valuable tools in the fight
against misinformation.
* Timothy Caulfield is a Canada research chair in
health law and policy at the University of Alberta, Edmonton, Canada.
Source : “Nature”, 27 April 2020
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